Waiting…

Another post from my lovely daughter and her lovely daughter x

dreambigfordixie

Always waiting.

Waiting for an appointment with one of her specialists.

Waiting for a therapy to begin.

Waiting for a returned call.

Waiting for a test.

Waiting for test results.

Waiting for equipment to come.

Always waiting for something. Always counting down the days.

And now we are on our biggest wait of all. Her open heart surgery. And it’s becoming really tough.

We found out at the end of May that the board of surgeons had agreed with Dixie’s cardiologist, that the best way forward was surgery.

We waited until the end of July to meet with the heart team. We were ushered first into a little room with one of the heart nurses. And even though he was a great resource of information my mind was blank.

I listened to him talk about how she needed to be given the ok from a dentist before they would operate…

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